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Leiomyosarcoma [LMS] is a rare cancer. We all had our lives irretrievably changed by it. We assume, because you are here, that your life has also been touched by it.

The purposes of this site are:


  • To give you information about Leiomyosarcoma
  • To describe what the treatment options are
  • To help you make decisions concerning your care, or the care of a loved one
  • To give you support and encouragement in the fight against LMS
Because of the rarity of Leiomyosarcoma, and the higher survival rates of sarcoma patients who are treated at sarcoma centers, we feel it is ESSENTIAL that you also request a referral to a sarcoma oncologist or sarcoma treatment center for overseeing your treatment, or for a second opinion. We define a sarcoma oncologist as an oncologist who sees at least 100 sarcoma patients a year, and who often works in or near a sarcoma treatment center.*

The diagnosis of cancer and its implications can create anguish and shock. All of us have been there. If you need help immediately, please join the ongoing discussion group at the L-M-Sarcoma ListServ at ACOR. CLICK HERE The L-M-Sarcoma ListServ list at ACOR offers a warm human response. They have all been where you are, too.

If there is difficulty getting through to the L-M-Sarcoma Mailing List above, CLICK HERE and contact us by email. We will help you join the L-M-Sarcoma ListServ in order to get your questions answered.


This information has been provided for you in loving kindness, by:

Doreen [website editor] chemist, professor, medical doctor, LMS patient [doctordee] [1943-2009]
Dick [website manager] carpenter, computer dinosaur, LMS widower
Doreen web designer, LMS widow [who designed the website and was its first manager]
Roger journalist, government consultant, LMS patient
Michael programming manager, avid researcher, LMS widower
Jim clinical biochemist, now computer consultant, LMS husband
Norman health administrator [CDC and NYC], LMS husband
Alison artist, book indexer, LMS patient
Jack engineer, LMS husband
Beth an editor and LMS daughter
Joyce [1932-2003] a remarkable woman and a source of love, warmth, and comfort for all of us. Still hugging. Listowner and LMS patient.

And many, many others who did research, gave encouragement, and shared their own experiences freely--in the hope of helping you.

We also give profound thanks to Gilles Frydman, the founder of ACOR. It was on the L-M-Sarcoma ListServ at ACOR that we all met. Join the ACOR L-M-Sarcoma List
We do wish to make the following suggestions and disclaimers:
The information on this site is not a substitute for professional medical advice. You should not use this information to diagnose or to treat a health problem or disease without consulting with your doctor.

*We recommend that you gather as much information as you can from this site and other reputable sources and discuss this information with your doctors. Discuss with the sarcoma oncologist any questions or concerns you may have regarding your condition. Together you should choose your course of action to take regarding treatment of your disease.

We make no guarantees about the accuracy of the information on this site, which is given free of charge to whomever requests it. However, we have made a good faith attempt to ensure that information provided is accurate and up-to-date. Much of the information has been published in respected medical journals and other sources.

Medical opinions change from month to month on some aspects of treatment and diagnosis of Leiomyosarcoma. We try to cover the treatment options. If you would like to make suggestions regarding changes, or if there is a problem with the website, please write to us.

These pages were last updated:
2-Jan-2010 at 17:26:34

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